Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry
ConditionTurner Syndrome
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexFemale
AgeNot listed
SponsorUniversity of Colorado, Denver
About this trial
INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.
Eligibility criteria
Qualifiers
Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
Informed consent/assent as appropriate
Disqualifiers
None
Trial design
Treatments tested in this trial
- No intervention
Treatment groups
No treatment groups listed
Sponsors and collaborators
Source ClinicalTrials.gov