International Rare Brain Tumor Registry

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeUp to 45
SponsorChildren's National Research Institute

About this trial

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Eligibility criteria

Qualifiers

Patients with a known or suspected CNS Sarcoma.

Patients with a known or suspected BCOR-altered brain tumor

Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor

Patients with known or suspected histologically ambiguous/unclassifiable brain tumor

Disqualifiers

The patient has an extra-CNS primary tumor.

The patient is older than 46 years of age at diagnosis.

The patient or family is not willing to participate or does not sign informed consent.

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

5,800 Participants
are grouped into 5 trial groups