The purpose of this study is to collect clinical, laboratory, and patient survey data from patients with Castleman disease to improve understanding, diagnosis, and treatment of the disease. Funding source - FDA OOPD.
Person of any age
Have a reference pathology report suggesting "Castleman disease" not limited to cutaneous involvement only that can be uploaded
Be able to provide electronic informed consent, as per local regulations
Deceased patients may also be enrolled when a reference pathology report suggesting "Castleman disease" can be supplied or when the ART is able to locate and upload such a pathology report.
Because this registry is designed to provide as wide a picture of routine clinical practice as possible, inclusion criteria are set deliberately wide and there are no exclusion criteria.
University of Pennsylvania
Lead sponsor
EUSA Pharma, Inc.
Collaborator
Castleman Disease Collaborative Network
Collaborator