The purpose of this observational study is to collect data on the natural history of disease of patients with Hemophagocytic Lymphohistiocytosis (HLH) including diagnosis, treatments, responses, and outcomes.
Patients with clinically suspected or confirmed HLH, including those meeting the HLH-2004 diagnostic criteria (primary or secondary forms, including malignancy) and other forms of HLH (macrophage activation syndrome [MAS], cytokine release syndrome [CRS], etc.)
Signed and dated informed consent and assent (adolescents)
None
Children's Hospital Medical Center, Cincinnati
Lead sponsor
Sobi, Inc.
Collaborator
Baylor College of Medicine
Collaborator