The current standard of care for paediatric patients with cancer regarding preservation of their fertility (FP) is to provide high-quality information during the clinical consultation process. However, this approach depends on health provider knowledge and communication and has been shown to be sub-optimal in some situations. This impairs the critical decision-making of patients regarding fertility testing, utilization of gametes, and continuing payment of storage fees. The fertility preservation decision aid (FP DA) may lead to a greater understanding of their fertility status for participants. This knowledge may allow participants the opportunity to assess potential fertility issues prior to the end of their reproductive window, helping to minimize missed opportunities for parenthood.
This research study aims to assess the effectiveness of the use of the FP DA on unmet fertility information needs when it is provided in addition to high-quality information in parents of cancer survivors and CAYA cancer survivors compared to high-quality information alone.
Be able to communicate in English.
Signed written informed consent form.
CAYA cancer survivors aged 16 years or over who have completed curative gonadotoxic treatment.
Participants can be on long-term adjuvant or endocrine therapy.
CAYA patients currently undergoing cancer treatment and their parents/guardians.
CAYA patients who are palliative and their parents/guardians
A family member already in the study.
Murdoch Childrens Research Institute
Lead sponsor
University of Melbourne
Collaborator