The investigators will conduct a pilot feasibility and efficacy trial of a newly developed family health communication tool (called Let's Get REAL) in increasing youth involvement in real-time stem cell transplant and cellular therapy decisions (SCTCT). The investigators will pilot the intervention among 24 youth and their parents, stratified by youth age (stratum 1, 8-12 years of age and stratum 2, 13-17 years of age).
Children or adolescents 8-17 years of age referred for SCTCT.
Diagnosis of malignant or nonmalignant disorder.
Referred for any type of SCTCT. Autologous and allogeneic stem cell and cellular therapies are eligible.
Planning to meet with a provider to discuss SCTCT.
Active medical problems severe enough to preclude study participation at the time of recruitment.
Patients who are otherwise eligible, but whose primary transplant physician does not want them to participate in the study.
Lacks cognitive capacity to complete study activities, as determined by consenting professional.
Their youth referred for SCTCT does not assent to participate.
Washington University School of Medicine
Lead sponsor
National Cancer Institute (NCI)
Collaborator
St. Louis Children's Hospital Foundation
Collaborator