Longitudinal Endpoint Assessment of Disease Burden in HD

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorHuntington Study Group

About this trial

LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.

Eligibility criteria

Qualifiers

Be 18 years of age or older;

Be willing and able to provide informed consent electronically;

Self-report, when answering as a participant, that you have been diagnosed with HD by a doctor, or have undergone genetic testing and been found to carry the gene mutation responsible for HD but have not been clinically diagnosed with HD (prodromal HD);

Have the ability to answer online questions or direct someone else to enter answers for them;

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

No trial groups listed

Sponsors and collaborators

Huntington Study Group

Lead sponsor

University of Rochester Center for Health + Technology

Collaborator

Modality.AI, Inc

Collaborator

Neurotargeting LLC

Collaborator