About this trial
LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.
Eligibility criteria
Qualifiers
Be 18 years of age or older;
Be willing and able to provide informed consent electronically;
Self-report, when answering as a participant, that you have been diagnosed with HD by a doctor, or have undergone genetic testing and been found to carry the gene mutation responsible for HD but have not been clinically diagnosed with HD (prodromal HD);
Have the ability to answer online questions or direct someone else to enter answers for them;
Disqualifiers
None
Trial design
Treatments tested in this trial
- Not listed
Trial groups
Sponsors and collaborators
Huntington Study Group
Lead sponsor
University of Rochester Center for Health + Technology
Collaborator
Modality.AI, Inc
Collaborator
Neurotargeting LLC
Collaborator