Health Trials

Lymphatic Anomalies Registry for the Assessment of Outcome Data

ConditionsLymphatic MalformationGeneralized Lymphatic Anomaly (GLA)Central Conducting Lymphatic AnomalyCLOVES SyndromeGorham-Stout Disease ("Disappearing Bone Disease")Blue Rubber Bleb Nevus SyndromeKaposiform LymphangiomatosisKaposiform Hemangioendothelioma/Tufted AngiomaKlippel-Trenaunay SyndromeLymphangiomatosis
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorBoston Children's Hospital

About this trial

Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.

Eligibility criteria

Qualifiers

Clinical diagnosis of complex vascular tumor, malformation or overgrowth syndrome with significant lymphatic component

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

No trial groups listed

Sponsors and collaborators

Boston Children's Hospital

Lead sponsor

Lymphatic Malformation Institute

Collaborator

Source ClinicalTrials.gov