Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome

ConditionRett Syndrome
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age4-60
SponsorGeorgetown University

About this trial

Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.

Eligibility criteria

Qualifiers

Rett syndrome,

Understanding of cause and effect,

Functional range of motion of arms to complete the movements needed to control the games.

Disqualifiers

no competing orthopedic or neuromuscular diagnosis that impacts shoulder movements

Trial design

Treatments tested in this trial

  • Modified Virtual Reality Gaming

Treatment groups

10 Participants
are divided into 1 treatment group

Sponsors and collaborators

Georgetown University

Lead sponsor

International Rett Syndrome Foundation

Collaborator