Measuring Impact of Computer Gaming on Arm Use in Rett Syndrome
ConditionRett Syndrome
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age4-60
SponsorGeorgetown University
Using a tele-research approach, we will recruit, enroll, guide and support carers and participants to engage in computer based activities (modified virtual reality) with the primary outcome of reducing stereotypies and increasing independent arm and hand use and secondary outcome of improving quality of living. Because of our virtual approach, we are able to recruit from multiple countries and all states and territories of the USA.
Rett syndrome,
Understanding of cause and effect,
Functional range of motion of arms to complete the movements needed to control the games.
no competing orthopedic or neuromuscular diagnosis that impacts shoulder movements
Georgetown University
Lead sponsor
International Rett Syndrome Foundation
Collaborator