This is a mixed methods study exploring the experiences of pregnancy and parenting among participants with Lyme disease. Eligible participants will have been diagnosed with Lyme disease (LD), post-treatment Lyme disease syndrome (PTLDS), and/or chronic Lyme (CL) either during or before a prior pregnancy. Participants will complete quantitative surveys on topics such as their medical history, their child(ren)'s development, and demographic information. They will then participate in a qualitative interview where they will be asked about their experiences with pregnancy and with parenting their child(ren) in the context of their condition.
Over 18 years of age and reside in the United States or Canada
Diagnosed with acute Lyme disease, PTLDS, and/or Chronic Lyme by a health care provider while they were pregnant OR PTLDS/CL prior to becoming pregnant with ongoing symptoms during pregnancy
Under 18 years of age
Live outside of the United States or Canada
Never been diagnosed with Lyme disease by a medical provider
Never been pregnant
Children's National Research Institute
Lead sponsor
Clinical Trials Network for Lyme and Other Tick-Borne Diseases
Collaborator
Steven & Alexandra Cohen Foundation
Collaborator