Pediatric Pulmonary Hypertension Network (PPHNet) Informatics Registry

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age1-21
SponsorNew York Medical College

About this trial

Patients are being asked to be in this research study because medical researchers hope that by gathering information about a large number of children with pulmonary hypertension over time, their understanding of the disease process will increase and lead to better treatment. Investigators believe that pulmonary hypertension in children is different than pulmonary hypertension in adults and this study will help us understand those differences.

Eligibility criteria

Qualifiers

The subject's age of onset of pulmonary hypertension must be prior to age 18 years

The person providing consent must be able to read either Spanish or English.

The subject (and/or parent/legal guardian) must be able to provide informed consent

Disqualifiers

Diagnosed with pulmonary hypertension after age 18

Refusal to sign informed consent

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

2,500 Participants
are grouped into 1 trial group

Sponsors and collaborators

New York Medical College

Lead sponsor

National Heart, Lung, and Blood Institute (NHLBI)

Collaborator

Janssen Pharmaceuticals

Collaborator