\~80% of ICU survivors experience profound long-term cognitive, physical, and psychiatric impairments known as post-intensive care syndrome (PICS). Caregivers additionally experience similar detrimental psychosocial effects following discharge. Despite this knowledge, follow-up care is almost non-existent. ICU follow-up clinics may mitigate these long-term impacts, but lack evaluation of their effectiveness. This trial will evaluate the effectiveness of ICU follow-up clinics vs. standard-of-care in improving qualitative/clinical outcomes of ICU survivors and caregivers, with those receiving follow-up care hypothesized to have improved outcomes.
ICU survivors
Adult patients (age greater than or equal to 18 years)
Life expectancy greater than or equal to 6 months as determined by the attending physician
mechanical ventilation (any, i.e., invasive or non-invasive)
ICU survivors and caregivers
Neurological or communication difficulties which would preclude completion of follow-up assessments or participation in focus groups
Inability to speak or read English (required for completion of standardized questionnaires, clinical assessments, and for participation in focus groups)
Failure to provide consent/failure to have consent provided by a substitute decision maker