About this trial
The purpose of this study, entitled "Psychological trauma, post-traumatic stress disorder, and resilience in adults with congenital heart disease in a large population sample", is to evaluate for exposures during a lifetime with congenital heart disease that may be associated with higher likelihood of developing PTSD.
Primary aim:
\- Identify individual patient characteristics (medical, psychosocial, socioeconomic, etc.) that are associated with a diagnosis of PTSD.
Secondary aims:
* Calculate the prevalence of those meeting PTSD criteria in the ACHD population using the "gold standard" diagnostic clinician interview, while using the same data to validate a PTSD screening self-report survey in the ACHD population. * Determine the role of resilience in ACHD patients using a validated screening survey to assess its protective role toward PTSD.
Hypotheses:
* There are certain exposures (e.g. post-surgical pain, ICU delirium, bullying due to CHD) that are associated with a higher incidence and odds of meeting PTSD criteria. * "Gold standard" diagnostic interviews will most accurately estimate the prevalence of PTSD in ACHD which has been overestimated on prior screening-based studies, although the scope of the problem is still great. * Patients with a higher resilience score will show an association with a lower risk of PTSD.
Eligibility criteria
Qualifiers
Congenital heart disease diagnosis, age >= 18 years
Enrolled in CHI registry
English proficiency for survey completion
Access to an internet connection. Can be via computer or handheld device.
Disqualifiers
Any who opt out
Age < 18 years
No diagnosis of congenital heart disease
Not enrolled in CHI registry/unable to access Internet
Trial design
Treatments tested in this trial
- Other
Treatment groups
Sponsors and collaborators
Dartmouth-Hitchcock Medical Center
Lead sponsor
Adult Congenital Heart Association
Collaborator