About this trial
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
Eligibility criteria
Qualifiers
Clinical Diagnosis of Pulmonary Hypertension
Disqualifiers
none
Trial design
Treatments tested in this trial
- Not listed
Trial groups
Sponsors and collaborators
University of Giessen
Lead sponsor
Imperial College London
Collaborator
Johns Hopkins University
Collaborator
Stanford University
Collaborator
University of Sheffield
Collaborator
University of Pittsburgh
Collaborator
University of Pavia
Collaborator
Hospital de Niños de la Santísima Trinidad
Collaborator
Academy of Medical Sciences of Ukraine
Collaborator
The Methodist Hospital Research Institute
Collaborator
Vanderbilt University Medical Center
Collaborator
Mayo Clinic
Collaborator
National and Kapodistrian University of Athens
Collaborator
Aristotle University Of Thessaloniki
Collaborator
University Hospital of Targu Mures, Romania
Collaborator
University Hospital Heidelberg
Collaborator
Milpark Hospital
Collaborator
University of Minnesota
Collaborator
Royal Prince Alfred Hospital, Sydney, Australia
Collaborator
Fiona Stanley Hospital
Collaborator
Sunshine Coast University Hospital
Collaborator
China-Japan Friendship Hospital
Collaborator
Medical University of Graz
Collaborator
National Hospital Organization Okayama Medical Center
Collaborator
Royal Hobart Hospital
Collaborator
University Hospital, Zürich
Collaborator
Universidad Nacional de La Plata
Collaborator
Gold Coast Hospital and Health Service
Collaborator