PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorUniversity of Giessen

About this trial

PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.

Eligibility criteria

Qualifiers

Clinical Diagnosis of Pulmonary Hypertension

Disqualifiers

none

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

40,000 Participants
are grouped into 2 trial groups

Sponsors and collaborators

University of Giessen

Lead sponsor

Imperial College London

Collaborator

Johns Hopkins University

Collaborator

Stanford University

Collaborator

University of Sheffield

Collaborator

University of Pittsburgh

Collaborator

University of Pavia

Collaborator

Hospital de Niños de la Santísima Trinidad

Collaborator

Academy of Medical Sciences of Ukraine

Collaborator

The Methodist Hospital Research Institute

Collaborator

Vanderbilt University Medical Center

Collaborator

Mayo Clinic

Collaborator

National and Kapodistrian University of Athens

Collaborator

Aristotle University Of Thessaloniki

Collaborator

University Hospital of Targu Mures, Romania

Collaborator

University Hospital Heidelberg

Collaborator

Milpark Hospital

Collaborator

University of Minnesota

Collaborator

Royal Prince Alfred Hospital, Sydney, Australia

Collaborator

Fiona Stanley Hospital

Collaborator

Sunshine Coast University Hospital

Collaborator

China-Japan Friendship Hospital

Collaborator

Medical University of Graz

Collaborator

National Hospital Organization Okayama Medical Center

Collaborator

Royal Hobart Hospital

Collaborator

University Hospital, Zürich

Collaborator

Universidad Nacional de La Plata

Collaborator

Gold Coast Hospital and Health Service

Collaborator