Registry for Patients With Lipodystrophy
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorUniversity of Ulm
About this trial
Given the lack of knowledge on lipodystrophies, the medical and social responsibility for the persons affected by it calls for the monitoring of the progression over long periods of time. Sensible clinical and basic research into rare diseases such as lipodystrophy is only possible in multi-location networks with sufficient case numbers. Also, reliable information on the incidence of certain manifestation patterns, health status, etc. is of utmost importance for health care and health policy in this rare disease.
Therefore, the European Consortium of Lipodystrophies (ECLip), an association of European experts on lipodystrophy, has launched a registry (OSSE) for lipodystrophies which is committed to help to improve the research conditions by consolidating this kind of information in a registry.
Eligibility criteria
Qualifiers
lipodystrophy
Disqualifiers
lipodystrophy due to anti-retroviral drugs
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Sponsors and collaborators
University of Ulm
Lead sponsor
Sorbonne University
Collaborator
University Hospital, Lille
Collaborator
University of Cambridge
Collaborator
Endocrinology Research Centre, Moscow
Collaborator
University of Leipzig
Collaborator
University of Amsterdam
Collaborator
Dokuz Eylul University
Collaborator
IRCCS Azienda Ospedaliero-Universitaria di Bologna
Collaborator
University of Rome Tor Vergata
Collaborator
University of Pisa
Collaborator
University of Santiago de Compostela
Collaborator
Università degli Studi del Piemonte Orientale Amedeo Avogadro
Collaborator
University Hospital Muenster
Collaborator
Szeged University
Collaborator
Centro Hospitalar do Porto
Collaborator
University Medical Centre Ljubljana
Collaborator
Medical University of Vienna
Collaborator
National and Kapodistrian University of Athens
Collaborator
Stoffwechselzentrum St. Gallen
Collaborator
National Taiwan University Hospital
Collaborator
Marmara University
Collaborator
University of Palermo
Collaborator
Attikon Hospital
Collaborator
Kinderkrankenhaus auf der Bult
Collaborator
Hopital Universitaire Robert-Debre
Collaborator
University of Milan
Collaborator
C.I. Parhon National Institute of Endocrinology
Collaborator
Source ClinicalTrials.gov