Registry Study on Primary Ciliary Dyskinesia in Chinese Children
ConditionPrimary Ciliary Dyskinesia
Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeUp to 18
SponsorBeijing Children's Hospital
About this trial
This study is a multicenter, prospective cohort study of patients diagnosed with primary ciliary dyskinesia, the clinical information of recruited patients, including clinical manifestations, lung function, chest imaging, quality of life and other indicators, will be followed for 10 years.
Eligibility criteria
Qualifiers
Age 0~18 years old
Abnormal ciliary beat frequency or movement by the high speed photography microscope
Abnormal ciliary structure through the electronic microscopy
The nasal NO decreased significantly
Disqualifiers
It is unable to provide complete medical records or the current condition can not accept the diagnosis process
She or he cannot agree to participate in the study.
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Locations
Sponsors and collaborators
Beijing Children's Hospital
Lead sponsor
Shengjing Hospital
Collaborator
Capital Institute of Pediatrics, China
Collaborator
Shanghai Children's Medical Center
Collaborator
Shenzhen Children's Hospital
Collaborator
The First Affiliated Hospital of Xiamen University
Collaborator
First Affiliated Hospital of Guangxi Medical University
Collaborator
Source ClinicalTrials.gov