This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.
The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Participants must have a diagnosis of desmoplastic small round cell tumor
Participants may be of any age as long as the appropriate consent and assent may be obtained
Willing to provide historical and longitudinal clinical data
Participant unwilling to provide consent or share historical and longitudinal clinical data