The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent videoconference-based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the United States.
Adult caring for family member with FTD.
Provides 4 or more hours of care/week. Does not have to reside with.
Identifies at least 2 moderately upsetting behaviors in the person with FTD.
Speaks and understands English to be able to participate in intervention.
No Frontotemporal Degeneration diagnosis.
Unable to leave Care Partner during STELLA-FTD sessions.
Enrolled in hospice.
Unable to find activity for Care Recipient during STELLA-FTD sessions to allow Care Partner to work privately with Guide and other Care Partners.
Oregon Health and Science University
Lead sponsor
National Institute on Aging (NIA)
Collaborator