About this trial
This study will examine the effectiveness of first-person storytelling in encouraging patients with end-stage renal disease to pursue Living Donor Kidney Transplant (LDKT). The Living Donation Storytelling Library LDSP is a library of videos from donors and recipients sharing their transplant stories, serving as a narrative-based transplant education resource. This study will investigate if exposure to the LDSP changes patient readiness and motivation to pursue LDKT to ultimately increase the number of donor inquiries and donor evaluations. This study will also test if the LDSP serves as a health-literate and culturally safe education approach that can effectively support racialized communities who have a disproportionately higher need for LDKT.
Eligibility criteria
Qualifiers
Waitlisted and newly referred kidney transplant candidates at the Vancouver Kidney Transplant Program
18 years of age or older
Able to provide informed consent
English literate
Disqualifiers
Inability to understand English and provide informed consent
Transplant candidates excluded from transplantation based on clinical criteria or other contraindications for transplant
Unwilling to disclose information on race or ethnicity
Trial design
Treatments tested in this trial
- Storytelling Video
- Standard Patient Education
Treatment groups
Sponsors and collaborators
University of British Columbia
Lead sponsor
Houston Methodist Transplant & Surgery Center of Excellence
Collaborator