Swiss Cerebral Palsy Registry
ConditionCerebral Palsy
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age0+
SponsorUniversity of Bern
About this trial
The Swiss-CP-Reg is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with cerebral palsy (CP) in Switzerland. It was first implemented in 2017 in the paediatric clinics in Basel, Bellinzona, Bern, Geneva, Lausanne, St. Gallen and Zurich. It is currently extended to all Swiss clinics and medical practices and adults will be invited to join the register in the coming years. The registry provides data for national and international monitoring and research. It supports research on CP in Switzerland and the exchange of knowledge between clinicians, researchers and therapists, with the goal to improve the treatment of children and adults with CP and optimizing their health and quality of life.
Eligibility criteria
Qualifiers
Who were diagnosed with CP, confirmation of the diagnosis at the age of 5 years is required
Who are born, treated for CP or living in Switzerland, and
Who gave informed consent
Disqualifiers
Pure muscular hypotonia
Neurometabolic diseases (e.g. neuronal storage diseases, leukodystrophies)
Other progressive neurological diseases (e.g. spinocerebellar ataxias, hereditary spastic paraplegia, Rett syndrome, epileptic encephalopathy)
Trial design
Treatments tested in this trial
- Not listed
Trial groups
15,000 Participants
are grouped into 1 trial groupSponsors and collaborators
University of Bern
Lead sponsor
Schweizerische Stiftung für das cerebral gelähmte Kind
Collaborator
SwissPedNet
Collaborator
Source ClinicalTrials.gov