Synovial Sarcoma Registry / Biospecimen Repository

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorChildren's Hospital of Philadelphia

About this trial

The purpose of this study is to collect and store data and samples for future research to attempt to improve outcomes for patients with synovial sarcoma. The future research will involve various types of genetic testing.

Participants will be asked to allow access to medical records and leftover tumor tissue and may be asked to give a blood or saliva sample. Participants will also be asked to completed questionnaires about their medical history and may be contacted every 6 to 12 months for updates for up to 10 years.

Eligibility criteria

Qualifiers

Males or females of any age

Reported diagnosis of synovial sarcoma

Informed consent from subject (aged ≥18 years) or parent/guardian

Disqualifiers

Individuals with sarcomas that do not fit the definition of those considered for this registry

Individuals who are unwilling to participate

Individuals who are unwilling or unable to provide written consent

Trial design

Treatments tested in this trial

  • Not listed

Trial groups

No trial groups listed