The goal of this intervention study is to determine the effect of a tailored exercise program (with aerobic, strength and balance training) in patients with FSHD.
The main aim is to determine the effect of the exercise program on pain and fatigue.
Participants will follow a 16 week training program with tailored exercises. The exercises will be prescribed via the app 'Physitrack'. After 16 weeks, the effect on pain, fatigue, fatigability, aerobic capacity, balance, physical function, sleep and the ability to participate in social activities will be determined.
Age >18 years
Verified diagnosis of FSHD type 1, based on the clinical criteria established by Padberg et al. (1991) (22).
Category A or B of the four clinical categories according to the Comprehensive Clinical Evaluation Form (23), these patients have the most peculiar signs of the disease
A CIS-fatigue score of ≥ 35
Use of beta-blocker medication
Presence of additional diseases likely to interfere with the measurements
Psychological-psychiatric disorders
A musculoskeletal injury that impairs exercising
Radboud University Medical Center
Lead sponsor
Università di Pavia
Collaborator