The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorUniversity of Bern
About this trial
The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.
Eligibility criteria
Qualifiers
Diagnosis of PCD (clinical and test certified)
Patient must undergo an ENT examination minimum once a year as part of their clinical follow-up
Disqualifiers
None
Trial design
Treatments tested in this trial
- Not listed
Trial groups
No trial groups listed
Sponsors and collaborators
University of Bern
Lead sponsor
Bicetre Hospital
Collaborator
Centre Hospitalier Intercommunal Creteil
Collaborator
University Hospital Southampton NHS Foundation Trust
Collaborator
Universitaire Ziekenhuizen KU Leuven
Collaborator
Amsterdam UMC, location VUmc
Collaborator
University of Cyprus
Collaborator
Hacettepe University
Collaborator
Marmara University
Collaborator
Hospital Universitario La Fe
Collaborator
Insel Gruppe AG, University Hospital Bern
Collaborator
Source ClinicalTrials.gov