The Global Angelman Syndrome Registry
ConditionAngelman Syndrome
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorFoundation for Angelman Syndrome Therapeutics, Australia
About this trial
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome.
The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.
Eligibility criteria
Qualifiers
Diagnosis of Angelman Syndrome
Disqualifiers
None
Trial design
Treatments tested in this trial
- Observational study only
Treatment groups
5,000 Participants
are divided into 1 treatment groupSponsors and collaborators
Foundation for Angelman Syndrome Therapeutics, Australia
Lead sponsor
The University of Queensland
Sponsor institution
Queensland University of Technology
Collaborator
Source ClinicalTrials.gov