About this trial
Sialidosis type 1 is an autosomal recessive disorder caused by bialleic NEU1 gene mutations. Patients with sialidosis type I present variable neurological and eye dysfunction and the progression rate is variable. The goal of this protocol is to assess the neurological and ophthalmological status of these patients and characterize the clinical and laboratory abnormalities in order to determine the natural history of the disease. Patients will be followed every 6 month with comprehensive clinical, neurological and ophthalmological examinations combined with neuropsychological, blood, radiological and electrophysiological tests.
Eligibility criteria
Qualifiers
Genetic diagnosis of sialidosis type I
Able to tolerate a general exam and neurological exam
Able to tolerate a modest amount of blood drawing
Able to tolerate the complete electrophysiological studies
Disqualifiers
Patients who cannot tolerate the scheduled examinations and blood drawing
Trial design
Treatments tested in this trial
- Observational study
Treatment groups
Locations
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