TSC Biosample Repository and Natural History Database

Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorNational Tuberous Sclerosis Association

About this trial

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

Eligibility criteria

Qualifiers

Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM).

Disqualifiers

None

Trial design

Treatments tested in this trial

  • Phlebotomy
  • Buccal (cheek) swab
  • Genetic Testing
  • Tissue donation after routine clinical procedure

Treatment groups

No treatment groups listed