Children and young people (CYP) with chronic kidney disease (CKD) say that physical activity, school, social activities and tiredness are the main issues they want to improve. As CKD in CYP is a rare disease, there is not much research into understanding these aspects, making it difficult to know how to support patients better. This project aims to investigate how physically active CYP with CKD are, and what psychosocial factors are affected by their illness. CYP aged 6-18 will take part in a battery of physical activity tests, par-take in an online survey looking at physical activity, quality of life, mental health, fatigue and strengths and difficulties, and take part in an interview to better understand what it is like to live with CKD.
CYP of school age between 6 and 18 years
Living and receiving care in Scotland for CKD
no clinical contradictions to physical function assessments
Enrolment in other clinical trials in which treatment is masked/blinded
Deemed to be clinically unstable by treating physician for participating in physical activity and exercise
Severe cognitive impairment (as will be unable to give consent)
Aged <6 or >18 years.