The study will compare health care utilisation and quality of life for patients with progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy in different parts of the region that our specialist clinic operates in with different services as well as in other regions with no specialist clinics. This study aims to investigate which aspects of the service are most beneficial for the patients and to determine the influence of support services and specialty clinics on patients and their carers.
Be aged 18 or over
Have capacity to consent at the beginning of their involvement
Have a diagnosis of a neurodegenerative disease which includes progressive supranuclear palsy, corticobasal syndrome and multiple system atrophy but may include other closely related diseases where the presentation is similar, such as Alzheimer's disease where they present with a corticobasal syndrome
Patients or carers not meeting the inclusion criteria
Patients with static deficits only who do not have a neurodegenerative syndrome.
Patients who the principal investigator feels are not suitable to take part due to co-morbidities or participation in other trials.