This methodological study aims to develop and validate a questionnaire named for the Assessment of Patient Knowledge in Pulmonary Arterial Hypertension. The study will be conducted in four phases: (1) questionnaire development based on guidelines and literature; (2) content validation by expert judges; (3) semantic validation with patients; and (4) psychometric testing in a sample of up to 200 patients with confirmed pulmonary arterial hypertension (PAH).
In addition to validation, the study will collect clinical and functional data from medical records, including risk stratification using the COMPERA 2.0 method The final instrument is expected to support patient education strategies and contribute to improved clinical management of PAH.
Adults aged 18 years or older
Confirmed diagnosis of Group 1 Pulmonary Arterial Hypertension (PAH)
Ability to read and understand the questionnaire language
Provided informed consent to participate in the study
Cognitive, visual, or auditory impairments that hinder questionnaire comprehension
Refusal to participate or withdrawal of informed consent
Inability to complete the questionnaire due to clinical instability