About this trial
Vitaccess Real CIDP (VRCIDP) is a patient registry designed to capture longitudinal observational data on chronic inflammatory demyelinating polyneuropathy (CIDP), its treatment, and impact on symptoms, daily activities, and quality of life (QoL). The duration of the registry is 10 years from launch, and approximately 300 patients will be recruited in the US and Europe with no defined upper limit. The registry will link relevant patient- and healthcare professional (HCP)-reported data with clinical data from electronic medical records (EMR). Patient reported and eCRF data will be linked via a unique ID and PIN assigned to each participant at enrolment.
Patients will be recruited at clinical sites in all participating countries. In the US only, patients can additionally be recruited via community neurologists or direct-to-patient recruitment.
Eligibility criteria
Qualifiers
Adult (age ≥18 years) with a clinically confirmed diagnosis of CIDP by their treating neurologist
Resident in the US, UK or Germany
Access to a smartphone/tablet/computer/laptop
Willing and able to provide informed consent in their local language to take part in the study
Disqualifiers
None
Trial design
Treatments tested in this trial
- Not listed