Status: Recruiting
International Registry of Patients With Alpha Thalassemia
This is an international prospective registry of patients with Alpha thalassemia to understand the natural history of the disease and the outcomes of fetal therapies, with the overall goal of improving the prenatal management of patients with Alpha thalassemia.
Participants needed: 500
Trial details
Biological sex: AllType: ObservationalSponsor: University of California, San FranciscoUpdated: Apr 4, 2025Locations: 1Duration: 30 Years
Eligibility criteria
diagnosis of alpha thalassemia (prenatal or postnatal) with genotype consistent... [+1]