Status: Recruiting
Myotubular and Centronuclear Myopathy Patient Registry
The Myotubular and Centronuclear Myopathy Patient Registry (also referred to as the 'MTM and CNM Registry') is an international, patient-reported database specific to these conditions. More details and online registration are available at www.mtmcnmregistry.org.
Participants needed: 500
Trial details
Biological sex: AllType: ObservationalSponsor: Newcastle-upon-Tyne Hospitals NHS TrustUpdated: Apr 9, 2025Locations: 1Duration: 1 Year
Eligibility criteria
Patients with a myotubular myopathy or centronuclear myopathy diagnosis, which h... [+2]