Status: Recruiting
Natural History Study for Charcot Marie Tooth Disease
The goal of this Natural History Study for Charcot-Marie-Tooth is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs) and clinical notes to identify the burden, diagnostic journey, and prevalence of disease that will aid scientists in their work toward finding a cure. Participants will be asked to complete a Natural History Survey.
Participants needed: 10,000
Trial details
Biological sex: AllType: ObservationalSponsor: Hereditary Neuropathy FoundationUpdated: Oct 1, 2024Locations: 1
Eligibility criteria
Not listed