Status: Recruiting
Swiss Registry for Neuromuscular Disorders
The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.
Participants needed: 2,000
Trial details
Age: 0+Biological sex: AllType: ObservationalSponsor: University of BernUpdated: Jan 15, 2026Locations: 19Duration: 80 Years
Eligibility criteria
Children, adolescents and adults diagnosed with a NMD [+2]
None if diagnosis is confirmed, whenever possible, by genetic testing, or at lea...