Status: Recruiting
Heart Institute Biobank & Registry for Adult Congenital Heart Disease and Related Disorders
A repository of biospecimens and detailed phenotypic information collected longitudinally from adults with congenital heart disease and related conditions, with an aim to facilitate future research on biologic mechanisms of underlying disease, compensation and deterioration; biologic correlates of patient experience and functional status; associations between clinical characteristics and various biomarkers; and predictors of clinical outcomes.
Participants needed: 5,000
Trial details
Age: 16+Biological sex: AllType: ObservationalSponsor: Children's Hospital Medical Center, CincinnatiUpdated: Mar 17, 2026Locations: 1Duration: 10 Years
Eligibility criteria
Any person ≥ 16 years-old suspected of having or diagnosed with congenital heart... [+4]
Unable to provide informed consent/assent personally or via a legal guardian. [+2]