Clinical trials

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Condition / disease
Location
Status: Recruiting

Epilepsy Learning Healthcare System (ELHS)

The Epilepsy Learning Health System (ELHS) is a quality improvement and research network to improve outcomes for people with epilepsy. The ELHS is designed as a model of value-based chronic care for epilepsy as envisioned by the National Academies of Medicine Committee in their landmark reports "The Learning Health System" and "Epilepsy Across the Spectrum: Promoting Health and Understanding". The ELHS network is a collaboration among clinicians, patients and researchers that promotes the use of data for multiple purposes including one-on-one clinical care, population management, quality improvement and research. The ELHS Registry includes data on children and adults with epilepsy collected during the process of standard epilepsy care. These data are used to create population health reports and to track changes in outcomes over time. ELHS teams use quality improvement methods, such as Plan-Do-Study-Act (PDSA) cycles, to continuously learn how to improve care.

Participants needed: 100,000
Trial details
Biological sex: AllType: ObservationalSponsor: Epilepsy Foundation of AmericaUpdated: Aug 30, 2024Locations: 13Duration: 10 Years
Eligibility criteria

Patient is in an established care relationship with the ELHS site

Patients who are not currently in nor expect to be in an established care relati... [+1]