Status: Recruiting
The International PNH Interest Group PNH Registry
The aim of this International PNH Interest Group (IPIG) registry is to develop an international database to prospectively collect data on patients with PNH covering clinical outcomes, patient reported outcomes (PROs), and health-resource utilization (HRU) on all enrolled patients, as well as long term safety data.
Participants needed: 2,000
Trial details
Biological sex: AllType: ObservationalSponsor: International PNH Interest GroupUpdated: Jul 29, 2024Locations: 1
Eligibility criteria
Patients with PNH confirmed by flow cytometry. [+1]
Participating in an interventional PNH clinical trial. Note: A patient included...