Status: Recruiting
The European Paediatric Network for Haemophilia Management ( PedNet Registry)
Rationale: Haemophilia is a rare disease; to improve knowledge international collaboration is needed. Well-defined clinical data will be collected from complete cohorts in order to prevent selection bias. Objective: To collect data on bleeding during neonatal period, endogenous (genetic) and exogenous (treatment-related) determinants of inhibitor development and long term outcome.
Participants needed: 4,000
Trial details
Biological sex: AllType: ObservationalSponsor: PedNet Haemophilia Research FoundationUpdated: Sep 16, 2025Locations: 39Duration: 18 Years
Eligibility criteria
Diagnosed with Haemophilia A or B [+3]
Patients referred because of an inhibitor* [+1]