Status: Recruiting
Pulmonary Fibrosis Foundation Community Registry
Pulmonary fibrosis (PF) results from a diverse group of health conditions and affects the lives of patients (including those who are post lung transplant), caregivers and family members. The Pulmonary Fibrosis Foundation Community Registry will offer an online portal where participants can self-enroll and directly contribute information about their experience with PF to be compiled into a longitudinal data set for use by researchers.
Participants needed: 10,000
Trial details
Age: 18+Biological sex: AllType: ObservationalSponsor: Pulmonary Fibrosis FoundationUpdated: Apr 11, 2025Locations: 1Duration: 5 Years
Eligibility criteria
Provision of signed and dated informed consent form online [+5]
Primary residence or place of care is outside of the US. [+8]