Status: Recruiting
Neurofibromatosis (NF) Registry Portal
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
Participants needed: 20,000
Trial details
Biological sex: AllType: ObservationalSponsor: The Children's Tumor FoundationUpdated: Aug 30, 2023Locations: 1Duration: 50 Years
Eligibility criteria
Diagnosed with NF1 [+2]
Failure to complete account registration