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Condition / disease
Location
Status: Recruiting

National Lymphangioleiomyomatosis Registry, France

RE-LAM-CE is a registry of lymphangioleiomyomatosis cases in France. its aim is to determine the incidence and prevalence of lymphangioleiomyomatosis in France, including demographic information and information concerning the timing and modalities of diagnosis. Based on the registry, we will set up a prospective cohort of patients. The database will include detailed medical information, particularly regarding progression of the respiratory function.

Participants needed: 200
Trial details
Age: 18+Biological sex: AllType: ObservationalSponsor: Vincent COTTINUpdated: Mar 13, 2025Locations: 1
Eligibility criteria

Patients with sporadic lymphangioleiomyomatosis or associated with Tuberous scle... [+1]

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