Alpha-1 Research Registry
ConditionAlpha 1-Antitrypsin Deficiency
Trial statusRecruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
AgeNot listed
SponsorAlpha-1 Foundation
About this trial
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Eligibility criteria
Qualifiers
Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.)
Alpha-1 carriers (PiMZ, PiMS etc.)
Disqualifiers
Failure to provide informed consent
Normal healthy individuals (MM)
Trial design
Treatments tested in this trial
- Not listed
Trial groups
4,000 Participants
are grouped into 2 trial groupsSponsors and collaborators
Source ClinicalTrials.gov