Status: Recruiting
Alpha-1 Research Registry
The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.
Participants needed: 4,000
Trial details
Biological sex: AllType: ObservationalSponsor: Alpha-1 FoundationUpdated: Jan 30, 2024Locations: 1Duration: 2 Years
Eligibility criteria
Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.... [+1]
Failure to provide informed consent [+1]