About this trial
Anomalous aortic origin of a coronary artery (AAOCA) is a group of rare congenital heart defects with various clinical presentations. The lifetime-risk of an individual living with AAOCA is unknown, and data from multicentre registries are urgently needed to adapt current recommendations and guide optimal patient management. The European Registry for AAOCA (EURO-AAOCA) aims to assess differences with regard to AAOCA management between centres.
Eligibility criteria
Qualifiers
All patients with a diagnosis of AAOCA (either referred to surgery or to medical follow-up )
Disqualifiers
isolated high-coronary take-off (≥ 5mm above sino-tubular junction), anomalous origin of a circumflex from the right coronary artery, anomalous course with a normal origin, and association to major congenital heart disease (i.e. Tetralogy of Fallot, transposition of the great arteries, anomalous origin of a coronary from the pulmonary artery).
Trial design
Treatments tested in this trial
- unroofing or other surgery if needed
Treatment groups
Sponsors and collaborators
University of Padova
Lead sponsor
IRCCS Policlinico S. Donato
Collaborator
Mitera Children's Hospital, Athens Heart Surgery Institute, Greece
Collaborator
Ospedale Civile Ca' Foncello
Collaborator
University Hospital, Ghent
Collaborator
Guy's and St Thomas' NHS Foundation Trust
Collaborator
Azienda Ospedaliera Universitaria Integrata Verona
Collaborator
University Medical Center Groningen
Collaborator
Hospital Universitario La Paz
Collaborator
Cliniques universitaires Saint-Luc- Université Catholique de Louvain
Collaborator
Insel Gruppe AG, University Hospital Bern
Collaborator
Azienda Ospedaliero-Universitaria di Parma
Collaborator