The goal of this observational study is to learn about levels and patterns of fatigue in adults with cerebral palsy (CP) and acquired brain injury (ABI) in daily life.
The main question it aims to answer is: How do adults with CP and ABI experience fatigue in daily life?
Researchers will compare data from CP and ABI with healthy volunteers to see if they experience fatigue differently.
Participants will:
* Monitor their symptoms, mood, and behavior in real-time by completing a brief survey on their mobile phone 10 times a day for seven consecutive days. * Attend a briefing session the day prior to the seven-day period of real-time monitoring. * Wear an accelerometer for the seven-day period. * Complete a daily sleep diary for the seven-day period. * Receive feedback on their real-time monitoring data, sleep and activity data.
Score of minimum 4 on the 7-item Fatigue Severity Scale (CP and ABI only)
Speak, read, and write Danish
Living in a private residence (i.e., not in institutional care or facilities providing 24-hour assistance)
Able to walk independently or with assistive devices over short distances
History of other neurological disorders or chronic fatigue syndrome requiring treatment
Current substance or alcohol abuse
Night shift work or travel across time zones (1 to 3 zones within the last week or 4 to 6 zones within the last two weeks or at least 7 zones within the last 4 weeks)
Rigshospitalet, Denmark
Lead sponsor
Center for Rehabilitation of Brain Injury (Center for Hjerneskade)
Collaborator
Vejlefjord Rehabilitation
Collaborator
Elsass Foundation
Collaborator