Myotonic Dystrophy Family Registry

ConditionsMyotonic Dystrophy Congenital Myotonic Dystrophy Myotonic Dystrophy 1 Myotonic Dystrophy 2 Dystrophia Myotonica Dystrophia Myotonica 1 Dystrophia Myotonica 2 Myotonia Dystrophica Myotonic Dystrophy, Congenital Myotonic Myopathy, Proximal PROMM (Proximal Myotonic Myopathy)Proximal Myotonic Myopathy Steinert Disease Steinert Myotonic Dystrophy Steinert's Disease Myotonia Atrophica

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

AgeNot listed

SponsorMyotonic Dystrophy Foundation

About this trial

The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.

Eligibility criteria

Qualifiers

Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test)

Disqualifiers

Not diagnosed with DM, unaffected family members

Trial design

Treatments tested in this trial

Patient-entered data

Treatment groups

No treatment groups listed

Sponsors and collaborators

Myotonic Dystrophy Foundation

Lead sponsor

Source ClinicalTrials.gov