Status: Recruiting
Myotonic Dystrophy Family Registry
The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.
Participants needed: 3,500
Trial details
Biological sex: AllType: ObservationalSponsor: Myotonic Dystrophy FoundationUpdated: Nov 21, 2024Locations: 1Duration: 5 Years
Eligibility criteria
Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed b...
Not diagnosed with DM, unaffected family members