The purpose of the project is to set up a national, prospective, longitudinal, multicenter cohort study, a tumor research platform, to document uniform data on characteristics, molecular diagnostics, treatment and course of disease and to collect patient-reported outcomes for patients with primary and secondary myelofibrosis and anemia in Germany.
Confirmed diagnosis of primary or secondary (post-polycythemia vera or post-essential thrombocythemia) myelofibrosis (MF) (Note: diagnosis according to WHO-2017, ICC-2022 or WHO-2022 or IWG-MRT criteria, respectively).
Diagnosis of anemia at the time of enrollment as per individual, clinical assessment by the local physician.
Start of first or subsequent systemic treatment for MF.
Informed consent and registration for the GSG-MPN Bioregistry.
No systemic therapy for diagnosed primary or secondary MF.
Planned allogenic stem cell transplantation (allo-SCT) or active participation in an interventional clinical trial.
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GermanyiOMEDICO AG
Lead sponsor
German Study Group for Myeloproliferative Neoplasms (GSG-MPN)
Collaborator